About Nyla

Intentionally, we do not allow Hypo-plastic Left Heart Syndrome (HLHS) to define who she is. It is important to our family and her development that this defect does not overshadow or stunt her childhood, potential, and dreams. In every sense of the word, Nyla personifies bravery, beauty, and determination. Being a child who has undergone and survived some arduous medical interventions, we still see the light and joy in her eyes when she goes to preschool and plays with her friends. She is like any other child who likes music, ice cream, going to the beach, being mommy and daddy's helper in the kitchen, amusement parks, and playing make-believe, but with a "special" heart. So, when you see Nyla, you see her personality and we intend to keep it that way.

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To date, she has undergone the Norwood, Glenn, and Fontan open-heart surgeries and countless other procedures. As her parents, we do not view Nyla's life through rose-tinted glasses. Instead, we are her biggest advocates and supporters. Although not easy, understanding how to juggle stressful times as well as keeping a sense of normalcy is a balancing act. To be honest, she has become one of our heroes. The grace she displays while living with HLHS is a true reflection of the groundwork we put in to assure she is healthy on all fronts. We are forever grateful for our village of resources. 

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Looking to the future, Nyla wishes to be either a doctor, rock star, teacher, or chef. We are not sure how she plans on accomplishing all of this but she certainly is ambitious. Ha-ha! We hope our journey with Nyla could be a beacon of light for other families caring for a child with HLHS. Community, patience, and a faith-based foundation has been a bedrock while going through.